Wednesday, August 22, 2012

Dakota Scout King

For those who have been keeping up, Friday was the 17th and was Cannon's last day of recovery from surgery.  We let him go outside a play basketball, jump on the trampoline, ride his bike, sweat, and do what boys do.  He had a great time!  Friday night, we went to Humble and met with my folks who'd received a gift card on Cannon's behalf and wanted to treat the boys to their first new bikes.  We met at WBT (If you've ever worked at Toys R Us, you may know WBT stands for We Be Toys) in Humble and let the boys peruse their bike selection.  We moved on to WalMart where we scored a couple new bikes the boys and the budget agreed on.  They're 6 and 4, they don't need freewheel BMX supercross bikes with a freestyle package and trial riding gear.  They need wheels and pedals.  WalMart sold wheels and pedals, WBT sold small expensive versions of adult bikes.

On Saturday, we stayed at the house most of the day and cleaned in preparation for having Scout come home the following week.  Daddy worked outside to get things in shape (I spent a little time on the boat: the rain the night before filled the boat and helped me find a leak on the starboard stern, which I epoxied.  Then I moved the boat to the slab and flipped over in preparation for paint).  We went to church Sunday AM, then continued in our quest to get the house ready for Scout.  Finally got to bed at 1 AM and got a few hours sleep before we had to get up at 5:30 to get to the hospital by 8.

On arrival, we met with the family so they could take possession of the boys and see Tori before going to the OR.  By 8:15 Tori was getting into a hospital gown, getting baby monitors installed on her belly, a nice little shave and an IV.  At 9:00, the whole family joined us in pre-op where we could just sit around and wait for the show to start.  A previous operation that morning was keeping the OR staff busy and a little late.  The family started talking about memories, and we remembered that 4 years ago in April we were doing our best to convince a 2-year-old Cannon that we were going to the hospital that morning so mommy could have baby brother.  Cannon was so used to coming to this hospital to get poked/prodded by the cardiology team trying to diagnose his heart condition, he thought any trip here was just for him.  He wasn't convinced until he saw doctors and nurses were coming in and doing things to mommy that they usually do to him.

Here's a pic of Tori in Pre-Op, looking at me over that little pooch of a belly:



At 9:50 Dr. Laden arrived and it was time to get started.  Tori walked back to the OR under her own power, I stayed in the holding cell until they were ready for me.  At 10:15 I was invited into the OR, they were well under way with Tori.  I started the video recorder and documented the whole deal.  At 10:25 I got to see my first dotter for the first time!  She was covered in white cheese and red splotches and looked like a bull dog for all the rolls of skin on her.  She weighed 9 pounds and 10 ounces, the biggest mommy has had.  But I have to say it runs in the family, Tori was 110 pounds when I met her... she'd only put on a hundred pounds since she was born (she was a 10-pound baby). 

I was running the video camera and had my finger on the photo button which allows me to take a snapshot while recording.  With both boys, I got pics of Dr. Laden holding them up over the curtain and I wanted to make sure I got a good pic of Scout as soon as Dr. Laden held her up.  So when she did hold her up, I hit the button.  The WRONG button... I hit the 'stop recording' button instead and missed my shot!  I quickly hit the photo button even though I'd quite video recording and got a nice, blurry, can't-tell-who-it-is-in-my-dotter's-first-picture.  Nice fumble, Daddy.  I can hear it in 10 years: "Daddy, how come you got good pictures of Cannon and Colton in the OR, but not me?  You don't love me as much, huh Daddy?!"  Oh well.

By 11:05 we were back in the recovery room and immediately trying to get Scout to latch on and feed.  Since "she's so fat", we also had to watch her blood-sugar level to make sure she's not diabetic.  Of course, mommy and daddy don't think she's fat, but according to statistics she is, and the hospital has policies regarding large babies.  I was amazed at the special treatment "fat" babies get.  She had to have her blood sugar checked before each of the first three feedings.  It had to be over 45, and Scout's was always in the 60s.

Through that first day, we had many visits from staff... never more than 10 minutes of peace.  But all was well with Scout. 

When Cannon was born, he didn't have any issues in the hospital either.  His heart defects weren't really known about until a week or two after he was born.  In the hospital, we'd only gotten a small indicator from the pediatrician that he might have a small hole in his heart, and it was common and would likely heal on its own.  Check the previous three months of this blog for the rest of that story. 

On the other hand, when Colton was born, he had some difficulties those first days.  He'd inhaled some fluid during birth and ended up in NICU the first couple days with breathing problems.  He also had jaundice.  All of which he recovered from 100% and has no medical issues at all today.  So in summary: both previous births had their issues, and Scout was our first "non-issue" birth.  We finally got one right!  So far.

Scout only cried that first day when she was hungry or had a dirty diaper.  She cried all day.  She was constantly after mommy's breast, and had more than average dirty diapers.  It was a fun day, with Aunt Nell and Uncle Bill visiting on the way in from Colby's place.  We got flowers from our awesome church family.  Papa was watching the boys, so when my parents went on a small shopping trip Tori and I both got a small 10 to 20 minute nap.  That was a good deal after having just a few hours of sleep the previous night.  Between the visits from friends and staff, and just holding my girl, I didn't take the time to blog.  Sorry to those who are waiting on this for an update!

After our naps, Nana and Gupa brought some Olive Garden for dinner and I got to eat like a King (since I wasn't sleeping like one).  We ate on the back porch at the cafeteria while the boys ran around.  Then everyone left and Tori and I started our first night with Scout.  The problem was, Scout didn't know what "night" meant.  We tossed her back and forth for hours trying to get her to calm down, but she wasn't obeying our commands.  I even threatened with spankings, told her she wouldn't get a phone till 20, none of this worked.  They offered us the use of the nursery, and at midnight we finally gave in and let them have her.  We slept fast and by 2:45 they brought her back for feeding.  Tori tried to feed her for the next two hours, but Scout was diligently NOT learning to breast feed.  While I was diligently trying to sleep!  I was able to get a bit more sleep through the morning, but Tori never did.

The next morning, Scout finally passed out from exertion.  This would be a great time for us to catch up on sleep, but we had visitors to tend to!  Besides, we wouldn't have slept because that would just put the whole family on a nocturnal schedule and you can't let the kids rule like that anyway.  Gonna make her fit into OUR schedule.  It might take until she's 2, but we'll get there.

And here she is sleeping, I present Dakota Scout King:

 

At about 10, Tori noticed a new pain in addition to her belly: her neck.  It seemed to be a severe crick in the neck, but steadily got worse over the day.  To the point that at about 2 in the afternoon she had to get back in bed.  In the process, I helped her ease down onto her back.  It was clear she was in great pain, but as soon as her back hit the bed she started crying and couldn't breathe.  I've known this girl for 14+ years and have seen her endure some terrible things, but never seen her cry from pain.  And seeing your loved one not able to breathe is a whole new experience for me!  I pulled her up a quick as I felt she could tolerate... she was able to breathe again but was still in severe pain.  I called for a nurse since we had an emergency, and while we waited for them Tori and I started trying to ease the pain and troubleshoot the cause.  A hot rag helped the pain, but we couldn't figure out the "why".  After some discussion, we figured it was likely from spending the whole day before looking down at a baby that wouldn't breastfeed.  But why the whole "couldn't breathe" thing?  We actually didn't know what to tell the nurse, and since we'd gotten the severity of the pain to drop off by keeping Tori vertical, we didn't press the issue that the nurse no-showed during our emergency.  When she finally did show up, we discussed and came to the conclusion it was a pinched nerve and the severity of that pain has the ability to keep you from breathing temporarilty... your body kind of tries to stop all movement to avoid the pain caused by the moving.  OK, whatever.  Up the meds and don't be late!!!  The nurse agreed to talk to the doc, who approved to increase pain meds.  We called every 4 hours on the dot and made sure they were en route.  They never were.  This continued for the duration of our hospital stay, but we never let Tori go without the meds!

Pastor Reeves came to visit, and at the same time Caroline and Liz Glasgow came as well.  We had a great time talking to them and enjoyed having new faces around (even if we didn't enjoy the faces... haha!  Don't worry, they'll understand).  Like all parents, we enjoyed showing off the new kid and letting everyone have a chance to hold her.  Tori eventually got to take an hour nap with Scout in her arms once everyone left; she was up to 8 hours of sleep in the last 60!  The boys and my parents came back that evening.  The boys had slept until 6 or so because Papa had worn them out in the hotel pool.  They got Sonic on the way over, and I went and picked up Wings n More for the rest of the adults.  We just hung out in the room and enjoyed quiet time... Scout had been sleeping ALL day.  We knew what that meant for the upcoming night.  She even stayed asleep while the boys held their little sister.  Cannon especially LOVES to hold her!  Here is is sitting between my folks asking serious questions:



By 9 PM, all the family had left and we got ready for a long night.  Scout was now awake and wouldn't stop crying.  She wouldn't latch on to mommy at all.  We asked for a breast pump, with the idea that we would pump and get an idea of how much Scout was getting out.  We pumped... and got nothing.  No wonder she's crying.  She's hungry.  We discussed this with our nurse and decided on a game plan: use formula to keep her fed, but don't allow formula until she's tried for a while to breastfeed.  I let Tori have the first formula-feeding for all her efforts, and it was funny to watch.  Like giving a glass of Vodka to a former alcoholic... that girl hit the bottle and within one taste went ballistic.  The bottle didn't have a chance.  She went through half the bottle in no time and was finally QUIET and awake at the same time.  A feat we'd had yet to accomplish.  She shortly went down in the bassinet and at an early 10 PM me and Tori got down to some real sleep.

Through the night, we had the usual interruptions for staff to monitor our patients.  At midnight, they took Scout back to the nursery for some more quiet time for us and to weigh her.  She'd dropped to 8 pounds and some ounces, which is normal and backed up our theory that she wasn't getting a whole bunch to eat.  I took a turn feeding her at 5 AM, she kept going back down after getting fed.  This whole newborn thing is easy!  Just feed 'em formula and they go to sleep for four hours, then repeat.  I'm going to try this with the boys when we get home.

That takes us to this morning.  Tori and I got up and had both gotten good sleep the night before.  I took the liberty of staying on the couch till after 7 to make sure I had enough sleep to drive us home safely (see how I did that?  Use a "logical theory" as an excuse.)  By 9 AM we'd seen both doctors and both have discharged our ladies!  It's almost 11 and we're seeing indications they're working to get us out of here!  We took bets last night on discharge time, and I bet 4:15.  I hope I lose!  I'm going to post this and then shut down and pack up the room.  I'll update again as soon as I have something worth writing about.  Also, I don't have the software with me to get the pics off the "good camera", the pics above are just pics with our phones.  When we get home, I'll try to get some good pics up here from the SLR.

Thanks for reading!
Marc, Tori, Cannon, Colton... and Scout!




Sunday, August 19, 2012

Mission Impossible: Complete

On Friday 8/17, we celebrated the 6-week mark from Cannon's surgery.  It's hard to believe not just what we've been through, but that we've been through it at all.  We anticipated it for so long, had so many ups and downs, so many prayers, so many doc appointments, so many conversations about it, so many attempts to picture it in our minds...

We prepped for the day of surgery.  It got rescheduled two weeks prior.  We prepped again.  It got rescheduled the night before.  We prepped again, it got rescheduled after Cannon already had sedation drugs administered in pre-op.  We prepped again, and finally had the surgery.  We survived the surgery and got into the hospital stay.  We went from the hospital to home and started recovery at home.  And after 5 weeks recovering at home, we are DONE.  It doesn't seem real any more.  The details are becoming fuzzier and fuzzier with every night of sleep.  I'm going to have to read the blog just to remember what we went through... I'm glad we took the time to do it!

Through recovery, Tori and rotated time at home with the boys.  We couldn't let Cannon go to daycare because they couldn't protect him and keep him down.  No family-members were available to watch him.  So after the initial two weeks at home with the whole family, I went back to work while Tori stayed home.  The next week, I worked from the house so Tori could go do her last close at Ricoh.  Then last week I was back at work while Tori worked from the house to watch the boys.

When I stayed home, I made sure to keep a close tab on the boys but tried to let them run the show and do what they wanted.  I let Cannon go outside for short spurts with the warning that if he lifted/exercised/sweated/fell/jumped/breathed too hard we might have to go back to the hospital.  He was smart enough to self-regulate and would mostly just walk around the yard.  Most of the time he just chose to stay inside and play Wii or DS, or watch TV or movies.  It was a tough existence for everyone, but I felt worst for Cannon.  On the other hand, Colton had zero restrictions and would go outside to play, only to return after only a few minutes.  Nothing was appealing to him if he didn't have his brother to share it with.  This went on for a month.  I can't express how proud I am of Cannon.  He's rolled with every single punch thrown at him from surgery through recovery, with less complaints in 6 weeks than I get in any 1-hour span at work.

So last Friday, when we were finally at 6 weeks, Cannon got to go free.  I stayed home with the boys so Tori could go have her last day in her office (she's changing to a work-from-home position, still at Ricoh).  While I stayed in the house and worked, the boys stayed outside most of the day.  Cannon was on his bike and the trampoline more than anything else.  He wanted to get in the pool, but it's over his head and Daddy had to stay at the computer (well on that day, I was on the phone 6 of 10 hours working).  On Saturday, it was back into public with no restrictions.  We went to Lizzie Glasgow's 4th birthday party, and Cannon was once again just one of the kids.  This morning, we went to church... Cannon was back in his Sunday School class and went to children's church.

Two months ago I wasn't sure Cannon would be here today.  Looking back on those days I still feel a bit "raw".  Maybe exhausted is an apt term.  I keep thinking back to the morning of July 6th, surgery day, when I got out of bed and my legs didn't want to move.  I kept thinking the task before us was impossible and surely God didn't really require us to endure it.  He kept telling me to put one foot in front of the other and let him handle the rest.  So I got up, took a shower, brushed my teeth, prayed with Tori and got the boys up, and marched the whole family toward an uncertain day.  One step at a time.  I remember as we made the long walk from the hotel to TCH through the crosswalks and tunnels, I kept looking at Cannon wondering if I would see him walk/talk/smile/laugh again.  Not the most optimistic thinking, but I feel it was necessary to prepare for any eventuality... it's just reality.

And it's over.  Not only is it over, we still have our son.  I never thought I'd see the day, and now that it's here I can only say one thing:  MY GOD IS AN AWESOME GOD. 

So what's next for the King family?  Tomorrow, we add Scout to our ranks!  She's our third child, but I won't say last child cuz I said Colton was our last child.  I thought we were done, but God had different plans: "You ain't got it right yet!  Here, try again."

We went to a Mexican restaurant today after church and asked for a table for 4, then realized it was the last time we'd ever say that!  After tomorrow, it'll cost too much to say "table for 5" so we'll just always eat at home.  Yep.

I'll try to do the same thing with the blog in the hospital tomorrow and give a blow-by-blow with Scout's birth.  Since both boys were born by C-section, they keep the trend going and we are scheduled for a 9:30 AM C-section.  Tori has been cleaning the house all day after church, I've been continuing work rebuilding the boat (that's another blog I might do one day).  As the main provider for the house, I've deemed it vital to PROVIDE the fun for the family.  So the work I'm doing on the boat is to make sure next summer I can PROVIDE fun boat trips for the family.  ;-)

Through Cannon's Eyes

Last Friday was the 27th, and officially marked Cannon's midway point through recovery.  I've always been curious what Cannon would remember from this ordeal, and wanted to try to minimize any traumatic memories.  I recall being in the ICU and going over with the staff the procedure for removing the breathing tube.  It was clear the tube wouldn't come out until Cannon was consciously breathing on his own, this meant we had to wake him up.

Up till that point, he'd been on narcotics and my hope was he wouldn't remember anything while he was on narcotics.  But we had to switch him from the narcotics to drugs that would allow him to wake up quickly so the tube could be removed.  They warned us that as he woke up, he was going to be ANGRY and it was at this point we could remove the tube... but not till then.  I realized this would probably be his first memory because he would be off the narcotics and consciously making himself breath.  This turned out to prove true because I asked him what his first memory was soon after we got home from surgery.

But six weeks later, following his recovery, his memory had changed.  The following is an impromptu interview of Cannon:

Cannon, what was the first thing you remember from waking up?
- I don't really know.

Did you have the tube in your nose?
- No, when I woke up it was already out of my nose.

What was the most painful thing you remember, what hurt the worst when you were at the hospital?
- Taking the tubes out.  Getting up kinda hurted!

Which tubes?
- The ones in my belly.

You remember the tubes in your belly?
- Yeah, that hurted the worst.

How long were we in the hospital?
- 8 days.

What else do you remember from the hospital?
- I remember having those breathing things in my nose [for the oxygen, not the breathing machine].

What was your favorite part about the hospital?
- When I got to walk around, and when I got to put my regular shirt on.
- My most favorite part of the hospital was when I got to leave!

Are you afraid to go back to the hospital?
- When am I going back?
Well you don't have to for a long time, but if you did have to go back would you be afraid?
- Well I am going to the hospital tomorrow with Mommy to have Scout.
- Are you done with me now?
Yeah, you can go play your DS some more.
[end of interview]

That's about all I could get out of him.  Not an overly traumatic experience it seems, but we'll see what he remembers in a year.

NOTE: I originally started writing this in early August but forgot to post it.  The interview was on 8/19/12.